Population Biobanks and social justice: Commercial or
Communitarian models?
A comparative analysis of benefit sharing,
ownership and access arrangements
Sarah
Wilson
Lancaster University
Abstract. The combination of
developing genomics and information technology in the form of population
biobanks has led to wide ranging discussions of the ethical, legal and social
implications of this new resource. This article addresses several aspects of
social justice, and includes matters relating to the broad themes of balancing
public and private interests, and the individual and the common good. These
themes will be addressed here by looking at the specific issues of benefit
sharing, ownership and access, in relation to three planned database projects,
in Iceland, the UK, and Estonia. These issues are considered in relation to
the opposing frameworks of commercialism and community.